A fitting end to Lupus Awareness month

At Rare Patient Voice, disease sufferers are given a voice, and are empowered as they share frustrations and challenges of living with a chronic illness. They may share suggestions for medical product or medication improvement; and they are listened to as some of their suggestions become the norm in clinical practice! Now, there’s a first: LISTEN TO PATIENTS, LISTEN TO CAREGIVERS! Currently, Rare Patient Voice has a survey opportunity for CAREGIVERS of lupus patients, which is a 30-minute zoom meeting with a compensation of $50. Please sign up at the link below to receive an email invitation to the survey. … Continue reading A fitting end to Lupus Awareness month