At Rare Patient Voice, disease sufferers are given a voice, and are empowered as they share frustrations and challenges of living with a chronic illness. They may share suggestions for medical product or medication improvement; and they are listened to as some of their suggestions become the norm in clinical practice! Now, there’s a first: LISTEN TO PATIENTS, LISTEN TO CAREGIVERS!
Currently, Rare Patient Voice has a survey opportunity for CAREGIVERS of lupus patients, which is a 30-minute zoom meeting with a compensation of $50. Please sign up at the link below to receive an email invitation to the survey.
https://www.rarepatientvoice.com/lupusguru Feel free to share this link!
Questions, concerns? E-mail study.inquiries.rarepatientvoice.com Melanie Havert, Rare Patient Voice
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